How I Created a Guided Navigation Platform helping Parents Find Autism Support 2x Faster Through a Structured Care Journey

How I Created a Guided Navigation Platform helping Parents Find Autism Support 2x Faster Through a Structured Care Journey

Background

Sojorne is a digital family assistant designed for care providers of children with special needs. Founded in 2022 by parents raising children with unique health conditions, the mission was clear: to simplify, streamline, and unify the fragmented tools available to caregivers.

Managing care for a child with special needs is a full-time job, often requiring guardians to juggle medical appointments, therapy schedules, care routines, documents, and tailored services. Despite existing tools on the market, many parents find themselves using multiple disjointed apps to manage their daily caregiving responsibilities.

Sojorne aims to consolidate all essential caregiving tools into one seamless, user-centered mobile experience.

My Role

I served as the Sole Product Designer, responsible for:

  • Information architecture and journey flows in conjuction with the CTO and PMs

  • UX prototyping

  • UI design across mobile and web screens

  • Collaboration with PM and CTO

  • Developer handoff and QA support

Core Problem

Caregivers of children with special needs face a combination of physical, emotional, and administrative burdens. These include:

  • Constant medical and therapy appointments

  • Keeping detailed records of medications and health updates

  • Coordinating care among multiple service providers

  • Accessing specialized services tailored to unique developmental needs

  • Navigating a sense of isolation due to lack of community support

No single platform addressed all these needs holistically.

Key Requirements

To effectively support caregivers, the Sojorne mobile app needed to:

  • Centralize daily care tasks (medications, routines, documents)

  • Provide calendar and scheduling tools for appointments and reminders

  • Offer a care circle feature to delegate and communicate with other caregivers

  • Enable access to vetted service providers for specialized services

  • Foster a supportive community space for connection and shared experiences

  • Maintain strong privacy and HIPAA-compliant document management

Approach & Process - Research and Discovery

We began by deeply immersing ourselves in the lived experiences of caregivers. Since the founding team included parents of children with special needs, we had access to a network of potential users.

User Research

We conducted:

  • 12 In-depth interviews with parents and guardians

  • 5 shadowing sessions to observe daily care workflows

  • Survey (n=50) to identify most-used tools and biggest frustrations

  • Expert interviews with pediatric specialists and therapists

Common Pain Points Included:

  • Forgetting appointments or duplicating information

  • Difficulty keeping up with changing routines

  • Overwhelm from managing multiple communication channels

Persona Development

We created 3 core personas:

  1. Maria – The Full-time Mom

    • Age 36, caregiver to a child with autism

    • Main pain point: juggling care planning and communication with therapists


  2. James – The Working Dad

    • Age 42, co-parenting from a distance

    • Main pain point: limited visibility into his child’s daily care routine


  3. Tosin – The Nanny Supporter

    • Age 29, hired caregiver

    • Main pain point: lack of centralized guidance and documentation

Competitive Analysis

1. Safe4All

  • Overview: A management and communication app designed for individuals with Intellectual and Developmental Disabilities (IDD), such as Autism, and their caregivers.

  • Key Features:

    • Facilitates communication between caregivers and individuals with IDD.

    • Offers tools for managing daily routines and safety protocols.

  • Limitations:

    Primarily focuses on safety and communication, lacking comprehensive care coordination features.

2. Choiceworks

  • Overview: An app that supports children with autism and other disabilities in maintaining daily schedules and routines.

  • Key Features:

    • Customizable visual schedules.

    • Tools for understanding and managing emotions.

  • Limitations:

    Geared more towards classroom settings; may not offer extensive caregiver collaboration tools.

3. iCan

  • Overview: An educational app aimed at developing socio-emotional, self-care, cognitive, and academic skills for students with learning disabilities.

  • Key Features:

    • Interactive activities tailored for children aged 3–14.

    • Supports skill development in various domains.

  • Limitations:

    Focuses on child development; lacks features for caregiver task management and coordination.

4. Innerhive

  • Overview: A dynamic app designed to simplify care coordination with personalized care maps.

  • Key Features:

    • Visualizes and keeps the entire care network synchronized.

    • Ensures comprehensive care through collaborative tools.

  • Limitations:

    May not include features like medication tracking or community support.

5. Bonding Health

  • Overview: An app focusing on ADHD but extends a holistic approach to support families dealing with a wide spectrum of special needs.

  • Key Features:

    • Offers tools for behavior tracking and management.

    • Provides resources for parental support.

  • Limitations:

    While holistic, it may not cover all aspects of care coordination required by caregivers.

Sojorne's Unique Value Proposition

While the aforementioned apps offer valuable features, Sojorne distinguishes itself through:

  • Comprehensive Care Coordination: Integrates scheduling, medication tracking, task management, and care planning in a single platform.

  • Collaborative Care Circles: Allows multiple caregivers to coordinate and share responsibilities effectively.

  • Voice Notes with Transcription: Enables caregivers to record and transcribe notes during appointments, ensuring accurate information sharing.

  • Community Support: Provides a platform for caregivers to connect, share experiences, and offer mutual support.

By addressing the multifaceted needs of caregivers in one cohesive platform, Sojorne offers a more holistic solution compared to existing apps.

Design Process - Information Architecture

We grouped features into clear categories based on user needs:

  • Care Organization: Scheduler, Task Manager, Care Planner

  • Health Management: Medication Tracker, Health Docs

  • Social & Support: Care Circle, Community Forum

  • Service Discovery: Vetted Provider Listings

App Layout & Features

We prioritized ease of use, accessibility, and emotional safety. Key features include:

Care Circle

Add co-guardians (e.g., partner, nanny, therapist)
Assign tasks, share updates, and get notifications

Medication Tracker

Schedule recurring meds with dosage and alerts
Store and share medical history with care providers

Task Manager

Daily/weekly tasks: feeding routines, therapy reminders
Integrated checklists and smart prioritization

Care Planner

Custom care routines by child
Editable templates for common conditions

Scheduler

Visual calendar with sync options
Appointment reminders, telehealth links

Community

Safe space for parents to connect, ask, and share
Moderated groups based on diagnosis, location, etc.

Voice Notes & Logs

Caregivers can quickly record voice notes during or after appointments to capture instructions, questions, or observations without needing to write.

Automatic transcription converts voice to text, making it searchable and easy to share with other caregivers or healthcare providers.

Notes can be tagged to children, dates, or care events (e.g., medication, symptom check-ins).

Solution Design and Features

Our visual and interaction design approach was:

  • Calm, soft UI using pastels and rounded edges to reduce stress

  • Onboarding walkthroughs for faster learning

  • Accessibility-minded (large touch targets, text scaling, WCAG color contrast)

We used Figma for design and prototyping, with Notion for documentation and Miro for IA diagrams.

Each module was tested in usability sessions, resulting in refinements like:

  • One-click access to the day’s top 3 tasks

  • Parent-friendly languages

Design Challenges and Solutions

Challenge 1: Too many features overwhelmed early testers
Solution: Phased rollout and modular onboarding. Users unlock new features as needed.

Challenge 2: Caregiver roles varied widely
Solution: Introduced role-based access control in the Care Circle, allowing customized permissions

Challenge 3: Privacy concerns
Solution: Built-in end-to-end encryption for documents and medical data + parental consent layers for sharing

Results and Impact

After MVP testing with 35 caregivers over 3 months, we achieved the following:

Success Metrics Achieved

  • 85% task completion rate within the Care Circle

  • 40% drop in missed appointments

  • 90% satisfaction with document management features

  • 7 out of 10 users said they felt less overwhelmed

  • 65% of users used the voice notes/logs weekly, especially after appointments or during bedtime routines

  • Users reported feeling 30% more in control of follow-up care thanks to being able to capture insights on the go

  • 78% of test users rated transcription accuracy and usefulness as "very high"

Increased Engagement

  • Community feature saw 60% weekly activity

  • 45% of users invited at least 1 other caregiver into their Care Circle

  • Users spent an average of 12 minutes/day using Sojorne

Conclusion and Next Steps

Sojorne Mobile successfully positioned itself as a unique and valuable assistant in the world of caregiving for children with special needs. By unifying fragmented tools into one intuitive platform, we improved caregiver productivity, emotional wellbeing, and care quality.

Future Plans

  • Provider Booking Integration – schedule sessions with listed specialists

  • AI Recommendations – smart suggestions based on diagnosis and care patterns

  • Behavior Tracking Module – for autism and ADHD monitoring

  • Multi-language Support – starting with Spanish and French

Lessons Learned

Designing for Emotion is as Important as Functionality

Working on Sojorne reinforced how emotionally loaded caregiving can be especially for parents of children with special needs. Designing with empathy wasn't just about clean UI. It required listening deeply, building trust through design, and acknowledging the emotional weight users bring into the app.

Lesson: Build emotionally intelligent features, not just usable ones. For instance, community support and voice logs became central after listening to what overwhelmed parents really needed.

One-Size-Fits-All Doesn’t Work for Specialized Care

Caregivers have diverse routines, preferences, and tech literacy levels. What works for one parent (a structured care planner) may be overwhelming for another who prefers logging by voice.

Lesson: Flexibility is key. We included features like voice notes, modular task views, and personalized reminders to meet users where they are—not where we assume they should be.

Collaboration with Real Users Drives Meaningful Design

Involving parents and caregivers during research, wireframing, and testing allowed us to prioritize the real pain points rather than theoretical assumptions. This helped avoid over-engineering and kept the product grounded in practical use.

Lesson: No amount of internal ideation replaces co-designing with the end user. Their lived experience is the roadmap.

The "Invisible Work" of Care Needs Visibility

Parents juggle a mental load that doesn’t always get recorded in traditional systems, like remembering behavioral triggers or coordinating with extended family. By providing a care circle and shared logs, Sojorne helped surface this invisible labor.

Lesson: Great design can make unseen work visible and shared—reducing stress and improving coordination.

Clarity Beats Complexity, Always!

Early designs tried to pack in too many features on one screen, leading to cognitive overload. Iterations with feedback helped simplify flows and emphasize the most urgent actions.

Lesson: Especially for time-pressed users, minimal interfaces that highlight next steps outperform feature-dense layouts.

Technical Limitations Spark Creative Solutions

We initially faced challenges with real-time transcription accuracy for voice notes. This led to exploring progressive enhancement, starting with recorded logs, then uploading for transcription in the background while allowing manual edits.

Lesson: Design isn't only about what’s possible now—but how to deliver value even under limitations.